Purpose is infections disease reference typing and surveilance. Includes all lab reporting and data are primarily generated by ESR.

Additional information:

Have_(encrypted)_NHI Yes
Personally identifiable (e.g. linked to NHI numbers) and longitudinal or aggregated (e.g. for planning, clinical research etc.)? Yes - via NHI
Volume of data (e.g. how many records) Since when? ?
Purpose and governance including ethics committee/patient consent mechanisms. Q: How do you get around ethics/privacy issues with your data sources? Esp. DHBs? collect on behalf of MoH - just custodians. No link to other stakeholders or consumer groups. Data access: happens through DAP - ESR manages external data requests but MoH approves. Internal access list is applied
Scope National
Does the data contain diagnoses and clinical outcomes? Does the data contain procedures, device information and medication for therapy? Does this data set have cost / price data? Partly: Demographics, Diagnoses, suspected organism from Labs and other survey questions
Presence of Data dictionary? Column headings in Excel or any kind of data model if residing in a relational database (e.g. Access, SQL Server, Oracle etc.) Case definition available
Linked (or linkable) to other datasets within your organisation or across the Sector linkable but not linked
How often does this data set get updated? Daily? Weekly? Monthly? Quarterly? Yearly? Real time
Indication of data quality (e.g. missing values, duplications, inconsistencies etc.). Q: Audits? How do you ensure the data is valid and correct? reasonably good.
Brief info about the systems and processes used to collect/manage data. Q: Where the data is collected, in what form, and accessibility? Lab data comes in automatically through HL7 interface. Survey questions come from GPs.
Data format, e.g., data structure, data types, and storage form (relational database, Excel, csv, etc.). Data goes into RDBMS
How well the data is structured, e.g. free text VS coded text VS pick-list (drop-down list) all structured